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CletusStory

My name is Douglas Silber and I am the proud owner of Cletus the Bloodhound, a 2 year old Bloodhound mix who has the first reported case of open lipped schizencephaly in a canine. I adopted Cletus when he was … Continue reading

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Neurology and Me

Neurology and Me: Disease, Art, Health and Hope. An evening at the intersection of art, science and innovation   Presenting an evening where art and science are merged to tell a story of the human experience with disease, art, health … Continue reading

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Dear ALS by Tim Barger

Dear ALS, As I sit here and ponder the future and what it has in store for me, I can’t seem to quit thinking and asking how I got here. So many questions with so little answers. Why is everyone’s … Continue reading

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Waltz with My Mother by Jonatha Brooke

Singer-songwriter Jonatha Brooke cared for her mother (a gifted poet and writer, as well) for more than two years as they travelled the strange and unpredictable path of Alzheimer’s disease together in Brooke’s New York home. Her mother died earlier this year.  A special Spotify sampler … Continue reading

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Destination: Everest Base Camp – shared by Gary Pinder

In 2010, Gary Pinder conquered the fabled Inca Trail to Machu Picchu with his wife Lisa and their two young children, ages 13 and 12 (story here). In 2011, Gary went bigger: he took his family on an adventure to … Continue reading

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The Warrior by Kimber Jenkins

Yawning, stretching She awakens Tries to walk But the movement’s been taken She gets to her computer Tries to search Too much information She’s left in a lurch not knowing what to do Or who to call She figures it … Continue reading

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Fighting Spirit – Join the Movement

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The Best Thing Ever by Nicole Lemelle (submitted via twitter)

“What we are today comes from our thoughts of yesterday, and our present thoughts build our life of tomorrow: Our life is the creation of our mind.”- Buddha I really like going to physical therapy in the pool. I can … Continue reading

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Trapped by Sarah Ezekiel

They said that my body would stop working I thought they were lying I was just like everybody else With a new life kicking in my bellyThey had to be wrong I was forced to believe When I couldn’t turn … Continue reading

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Nine Lives by Sarah Ezekiel

I’ve met a girl, he said That was three years ago I died inside I’ve met a lady, he said That was yesterday I died again I’m scared, he said Follow your heart, I said Hoping it will lead him … Continue reading

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