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Films

Steve’s ALS Story

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This film was a collaboration with the Motor Neurone Disease Association.
It highlights awareness of Motor Neurone Disease, also known as Amyotrophic Lateral Sclerosis or Lou Gehrig’s Disease. It also shows the hope and optimism that many people with this condition have, particularly Steve.

The film has gained over 11,000 views and generated a £500 donation. Special Thank you to Bernard Bushnell for filming and editing, Steve Evans for being our MND awareness advocate, and to Liam Dwyer for helping to promote the film.

Live for Today

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Live for today was a short film collaboration between UK Breakdance Championships and Movement for Hope in the lead up to the World Finals.

 

Special Thank You to:
Filming: Robert Evenden, UK Bboy Championship–Movement for Hope footage
Filming: Bernard Bushnell, MND footage
Filming, editing, video concept: Amber-Michelle Hill (Movement for Hope footage)
Music: Redsky
Berlin Consultant (Berlin Footage): Jascha Silbermann (http://consult.jascha.silbermann.name)
MND advocate: Steve Evans
MS advocate: Chris D’Souza

Sarah Inspired – patient-advocate story

By | Dance, Films, Youth | No Comments

Sarah Ezekiel Inspired

Sarah inspired is Movement for Hopes first awareness film. The film features Sarah Ezekiel, who has Motor Neurone Disease (MND), and her 14 year old daughter Aviva, a young dancer and story teller who choreographed the dancing in the film for her mother.

Motor neurone disease is a progressive neurological disease that attacks the upper and lower motor neurones. The disease progressively disables a person disrupting voluntary movement, such a walking, onward to involuntary movement, such as breathing. Sarah has lived with the or over twelve years now.

At the start of this film we wanted to know what kept Sarah going and how she has found her identity once again. The film has reached over 18,000 people and been featured in prestigious venues such as the Bloomsbury Theatre.

Sarah now sits as an honour art member of Movement for Hope’s board and an active member of our steering committee. Her story has evolved into several awareness projects and she has taken the reins of her life’s hobby, painting, back from the reins of MND using special adaptive eye gaze equipment. This equipment allows her to communicate with her family, friends, and fans.

Below features the inspire video and several other videos of Sarah’s.

  • Sarah Ezekiel inspired
  • Aviva’s Story
  • Sarah’s Journey to Paint
  • My Life with Tics: Canada & USA

    By | Dance, Films, Worldwide | No Comments

    My Tics and Me

    Increasing Awareness for Tourette Syndrome

     

    This short film is an awareness-education and inspiration film that was developed between three countries, including the United States and Canada, where it was filmed, and the United Kingdom for post production. The short film features two people who have Tourette Syndrome and suffer from involuntary movements and sounds that affect their everyday lives.

    Joel Goldman is a best selling crime writer that spent the bulk of his career as a trial lawyer based in Canada. He has adult onset of tics and expresses some of his experiences through the art of writing and character development.

    Sutie Madison is the founder and artistic director at Band of Artists, based in the United States. She is a professional dancer and musician who also has Tourette Syndrome. She expresses the involuntary tics that she has through her dance style. She describes the sequence of movements that she has during a tic, as a combination similar to a dance.

    Joel and Sutie are from different generations and have taken very different paths to rediscover themselves and their identity. Despite their differences in expression, they both arrive at the same conclusion about their illness.

    Watch the video below to find out more.

    • Collaborate
    • Advocate
    • Connect

    GRC Awareness & Dance Video Series – USA

    By | Dance, Films, Worldwide, Youth | No Comments

    Gwen Rakotovao Series

    Dancing that mixes styles and embraces the surroundings of New York as its backdrop–a story-telling adventure of hope and public awareness for two movement-debilitating neurological conditions.

     
    Screen Shot 2013-08-02 at 23.22.08

    This film series was a Movement for Hope project with a group of talented young dancers, directed and produced by the Gwen Rakotovao company. It features prestigious international dancers across several genres of dance, including contemporary dance, locking, waacking, jazz, and tap dance. The project was inspired by the Move Hope Project, which featured awareness for two movement-debilitating conditions called Multiple Sclerosis (MS) and Motor Neurone Disease (MND). The Move Hope Project’s mission was to connect science and art in a unique way to raise awareness for MND and MS. The two diseases currently have no cure. The GRC video series uses various definitions of Move, Hope, and Project to raise awareness and inspire others!

     

    The film series received international coverage in the UK, Paris, and New York. Click on the videos below to watch the entire series.


     


    Below: English translation (left), original article (right)

    Graffiti and Research Collaboration -Germany

    By | Art-Science, Exhibitions, Films, Worldwide | No Comments

    Graffiti Meets Science in Berlin

    Movement for Hope teamed up with stencil graffiti artist known as Plotbotterrobboter Ken (or Plotbot Ken) and Stattbad Wedding to do a public wall mural for Movement for Hope. The piece demonstrates the unity of art and science and it’s ability to inspire hope.

    Movement for Hope collaborated with clinical researchers at Charite Hospital to unite the graffiti time-lapse footage with awareness information, educating public audiences on two movement-debilitating diseases, motor neurone disease and multiple sclerosis.

    Special Thank you to Jascha Silbermann’s consultancy for the projects in Berlin.