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Education Pilot – Africa

By | Art-Science, Worldwide, Youth | No Comments

Cross-disciplinary Awareness-education Pilot in Nairobi, Kenya

 

The Problems:

  • Stigma and discrimination due to lack of awareness and traditional cultural beliefs that neurological illnesses, particularly epilepsy, are contagious and a curse.
  • 1 in 9 people with epilepsy go untreated in Africa due to lack of resources and awareness-education

Why Kenya?

Nairobi Kenya is the headquarters of our partners at the African Neurological Disease Research Foundation (ANDREF). We hoped to pilot there first and expand the programme with grassroots organisations throughout Africa.

The Pilot Objectives:

Short-term goals

  • Provide a Cross-disciplinary awareness-education model to improve stigma and discrimination of epilepsy
  • Distributing Information resources for students

Long-term goals

  • Developing a replicable awareness-educational program for ANDREF to continue in clinics and schools
  • Foster a generational cycle of change in the perception of epilepsy and other neurological illnesses in Africa as treatable conditions.

Outcomes:

  • We piloted an innovative cross-disciplinary awareness-education model that included a combination of dance, film, lectures and pop-quizes to improve stigma and discrimination of epilepsy in two schools in Kenya
  • We ran the pilot with over 2,000 students and tested their knowledge using lectures from Movement for Hope researchers and former Miss University of Nairobi who has epilepsy, combined with before and after questionnaires. Overall, students went from 8% to 97% increased learning of epilepsy.
  • Movement for Hope worked directly with ANDREF to further develop the cross-disciplinary education model so that it was replicable and sustainable with local partners in Nairobi to continue in schools
  • Movement for Hope volunteers successfully distributed information on epilepsy to the community and students, providing immediate guidance on how to help someone having a seizure, and local support resources.

Further Impact

  • We are also delighted to announce that the piloted Movement for Hope cross-disciplinary education model and ANDREF Film has now been accepted into the Ministry of Education.
  • Our team will continue to work with ANDREF to develop and expand sustainable health-education programs and improved models for sustainable healthcare

 

Thank you to the generous funders at the Youth Funding Network and public donations at the UK Breakdance Championship World Finals 2012, and to the volunteer dancers at Awareness Through Dance, volunteer therapists and community advocates from ANDREF and all the volunteers at Movement for Hope that contributed to this pilot.

Photos produced by Adam Illsley

Education Pilot – China

By | Worldwide, Youth | No Comments

Chongqing Education Pilot

 

English:

Movment for Hope ChinaDecember 2013, Movement for Hope ran its third youth outreach pilot in Chongquing, China. It was our first pilot project in China.
 
Objectives:
1.) First, we will be creatively engage young people, teaching them about neurological conditions. The aim is to decrease stigma and discrimination through education about brain and spinal cord illnesses.
 
2.)Second, we visited hospitals to share dialogue with professors and clinicians on neurological illnesses. The program was delivered in Chinese.

 

Outcomes:
1.)The results of a before and after survey showed that students 94% rated their knowledge and understanding of neurological conditions as significantly improved. 58% of students knew someone with a neurological condition.
 
2.)97% of people learnt about Movement for Hope and how they can better support people with neurological illnesses in China.

 
School Venues:
December 20th 2013
International Department of Chongqing No.1 Middle School
2 Huxia Road
Northern New Zone
Chongqing 401122

    December 21st 2013
    Chongqing No1. International Studies School
    2 Huxia Road
    Northern New Zone
    Chongqing 401122
     

    Chinese:

    Chinese (中文):
    2013 年末,我们将抵达中国重庆,开展一个前期活动, 以达到两个目的。我们将去到重庆一中国际部与师生们互动向青少年介绍了解有关大脑和脊椎神经的疾病,提高大家对神经系统疾病的认识,希望通过这种形式的宣传活动让大家行动起来,使更多的人关心和帮助这个群体。我们也会渠道当地的医疗机构同研究和从事该方向的专业人员进行采访和交流。
     
    详情请见我们的网站,联系我们的项目负责人请将您的留言发入我们的咨询栏.
    To find out more or contact the project leader please fill in your query below.
     

    Your Name (required)

    Your Email (required)

    Subject

    Your Message

    My Life with Tics: Canada & USA

    By | Dance, Films, Worldwide | No Comments

    My Tics and Me

    Increasing Awareness for Tourette Syndrome

     

    This short film is an awareness-education and inspiration film that was developed between three countries, including the United States and Canada, where it was filmed, and the United Kingdom for post production. The short film features two people who have Tourette Syndrome and suffer from involuntary movements and sounds that affect their everyday lives.

    Joel Goldman is a best selling crime writer that spent the bulk of his career as a trial lawyer based in Canada. He has adult onset of tics and expresses some of his experiences through the art of writing and character development.

    Sutie Madison is the founder and artistic director at Band of Artists, based in the United States. She is a professional dancer and musician who also has Tourette Syndrome. She expresses the involuntary tics that she has through her dance style. She describes the sequence of movements that she has during a tic, as a combination similar to a dance.

    Joel and Sutie are from different generations and have taken very different paths to rediscover themselves and their identity. Despite their differences in expression, they both arrive at the same conclusion about their illness.

    Watch the video below to find out more.

    • Collaborate
    • Advocate
    • Connect

    GRC Awareness & Dance Video Series – USA

    By | Dance, Films, Worldwide, Youth | No Comments

    Gwen Rakotovao Series

    Dancing that mixes styles and embraces the surroundings of New York as its backdrop–a story-telling adventure of hope and public awareness for two movement-debilitating neurological conditions.

     
    Screen Shot 2013-08-02 at 23.22.08

    This film series was a Movement for Hope project with a group of talented young dancers, directed and produced by the Gwen Rakotovao company. It features prestigious international dancers across several genres of dance, including contemporary dance, locking, waacking, jazz, and tap dance. The project was inspired by the Move Hope Project, which featured awareness for two movement-debilitating conditions called Multiple Sclerosis (MS) and Motor Neurone Disease (MND). The Move Hope Project’s mission was to connect science and art in a unique way to raise awareness for MND and MS. The two diseases currently have no cure. The GRC video series uses various definitions of Move, Hope, and Project to raise awareness and inspire others!

     

    The film series received international coverage in the UK, Paris, and New York. Click on the videos below to watch the entire series.


     


    Below: English translation (left), original article (right)

    USA Dance-a-thon and Youth Education

    By | Dance, Worldwide, Youth | No Comments

    Move 4 Health USA Dance-a-thon

    Dancing to support neurological health

     

    Movement for Hope held its first dance-a-thon in the United States! The initiative was lead by a group of young students in a program called JAVA, John Adams Volunteer Association.  The programme started with a large Skype education programme in which students participating in the dance-a-thon learned about neurological conditions and what their impact is on society.

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    Aim:

    To improve awareness and funding support for neurological conditions.
     
    The students then planned together and took the initiative to run a large school-wide all night dancing event!! The dance-a-thon was titled “Move 4 Health”, where students and the local community danced all night long and raised $2000 to support people with neurological conditions!
    1011081_466020340156774_1461300054_n
    Proceeds from the event will be split equally for research, awareness education, and adaptive equipment purchases to improve the outcomes for people with brain & spinal cord illnesses!1011081_466020340156774_1461300054_n

    • Collaborate
    • Advocate
    • Connect

    Graffiti and Research Collaboration -Germany

    By | Art-Science, Exhibitions, Films, Worldwide | No Comments

    Graffiti Meets Science in Berlin

    Movement for Hope teamed up with stencil graffiti artist known as Plotbotterrobboter Ken (or Plotbot Ken) and Stattbad Wedding to do a public wall mural for Movement for Hope. The piece demonstrates the unity of art and science and it’s ability to inspire hope.

    Movement for Hope collaborated with clinical researchers at Charite Hospital to unite the graffiti time-lapse footage with awareness information, educating public audiences on two movement-debilitating diseases, motor neurone disease and multiple sclerosis.

    Special Thank you to Jascha Silbermann’s consultancy for the projects in Berlin.

    Adaptive Equipment -Rehabilitation Nairobi

    By | Worldwide | No Comments

    Rehabilitation in Nairobi, Kenya

    The Problems:

    • Lack of rehabilitation supplies in the slums of Nairobi contributing to reduced treatment options
    • Stigma and discrimination due to lack of awareness and traditional cultural beliefs of neurological illnesses as contagious or curses.

    Why Kenya?

    Nairobi Kenya is the headquarters of our partners at the African Neurological Disease Research Foundation (ANDREF). We hoped to pilot there first and expand the programme with grassroots organisations throughout Africa.

    The Objectives of the Pilot:

    Short-term goals

    • Delivery of Sustainable Rehabilitation Equipment and Supplies
    • Pilot a Cross-disciplinary awareness-education model
    • Distributing Information resources

    Long-term goals

    • Further re-usable rehabilitation equipment
    • Developing a replicable awareness-educational program for ANDREF to continue in clinics and schools
    • Build a revenue model that ANDREF can use to fund adaptive-equipment purchases for their clinics.

    Outcomes:

    • Successful delivery of sustainable rehabilitation supplies to two clinics in Kibera slum and Waithaka
    • Visited over 100 patient-families and advocates in the clinics and watched a film on epilepsy to increase awareness-education of families affected by the illness.
    • ANDREF took Movement for Hope to visits to slum villages and homes to improve our awareness of the living conditions, extreme poverty, and additional work necessary for families affected by neurological illnesses, including cerebral palsy, epilepsy, and hydranencephaly
    • Movement for Hope worked directly with ANDREF to develop revenue models for more sustainable healthcare and equipment maintenance of the clinics.
    • Volunteers successfully distributed information on epilepsy to the community, providing immediate guidance on how to help someone having a seizure, and local support resources.

    Further Impact

    • We are also delighted to announce that the piloted Movement for Hope cross-disciplinary education model and ANDREF Film has now been accepted into the Ministry of Education.
    • Our team will continue to work with ANDREF to develop and expand sustainable health-education programs and an improved model for sustainable healthcare

     

    Message from Marieke, the director at ANDREF, to Movement for Hope and all those that donated

    View our cross-disciplinary awareness-education initiative in Africa here

     

    Thank you to the generous funders at the Youth Funding Network and public donations at the UK Breakdance Championship World Finals 2012, and to the volunteer dancers at Awareness Through Dance, volunteer therapists and community advocates from ANDREF and all the volunteers at Movement for Hope that contributed to this pilot.