Cross-disciplinary Awareness-education Pilot in Nairobi, Kenya
- Stigma and discrimination due to lack of awareness and traditional cultural beliefs that neurological illnesses, particularly epilepsy, are contagious and a curse.
- 1 in 9 people with epilepsy go untreated in Africa due to lack of resources and awareness-education
Nairobi Kenya is the headquarters of our partners at the African Neurological Disease Research Foundation (ANDREF). We hoped to pilot there first and expand the programme with grassroots organisations throughout Africa.
The Pilot Objectives:
- Provide a Cross-disciplinary awareness-education model to improve stigma and discrimination of epilepsy
- Distributing Information resources for students
- Developing a replicable awareness-educational program for ANDREF to continue in clinics and schools
- Foster a generational cycle of change in the perception of epilepsy and other neurological illnesses in Africa as treatable conditions.
- We piloted an innovative cross-disciplinary awareness-education model that included a combination of dance, film, lectures and pop-quizes to improve stigma and discrimination of epilepsy in two schools in Kenya
- We ran the pilot with over 2,000 students and tested their knowledge using lectures from Movement for Hope researchers and former Miss University of Nairobi who has epilepsy, combined with before and after questionnaires. Overall, students went from 8% to 97% increased learning of epilepsy.
- Movement for Hope worked directly with ANDREF to further develop the cross-disciplinary education model so that it was replicable and sustainable with local partners in Nairobi to continue in schools
- Movement for Hope volunteers successfully distributed information on epilepsy to the community and students, providing immediate guidance on how to help someone having a seizure, and local support resources.
- We are also delighted to announce that the piloted Movement for Hope cross-disciplinary education model and ANDREF Film has now been accepted into the Ministry of Education.
- Our team will continue to work with ANDREF to develop and expand sustainable health-education programs and improved models for sustainable healthcare
Thank you to the generous funders at the Youth Funding Network and public donations at the UK Breakdance Championship World Finals 2012, and to the volunteer dancers at Awareness Through Dance, volunteer therapists and community advocates from ANDREF and all the volunteers at Movement for Hope that contributed to this pilot.
Photos produced by Adam Illsley