How We Make Change Happen
The main problem that we are addressing is lack of social and financial support for neurological conditions.
Why don’t people with neurological conditions already have support?
The root cause for inadequate support for people with neurological conditions, is the lack of awareness regarding their prevalence and the economic impact (The World Health Organisation, Neurological Disorders: Public Health Challenges, 2006). This contributes to failed outcomes for neurological conditions including restricted access to funding for research interventions and service provisions of funding for adaptive rehabilitation equipment (that is not accessible via the government).
What We Are Doing To Address This Problem?
Funding generated from our events support three fundamental target areas to improve the lives of people living with neurological conditions: awareness-education, adaptive equipment support and research. These targets are the principal areas of need and address the root causes of lacking support and failed outcomes for neurological illnesses.
We make change happen in two ways:
(i) We use collaborative planning to bridge communication gaps between patients and researchers. Subsequently, we utilise the arts to increase public awareness and knowledge of research and the needs of people disabled by neurological conditions.
(ii) Our funding targets address the root causes to lacking public support of research and the needs of people disabled by neurological conditions. Our work improves the quality of life for people disabled by neurological conditions by providing access to adaptive-equipment necessary to ease the burden of disability, and by providing scientists with the support they need to effectively share important advancements in research.
What Are We Achieving?
Our Outputs – a quantitative overview of our activities
|The statistics are a quantification of subscribed and registered members, our film analytics, event overheads and overall reach of awareness-targeting activities, a sum of our accessible network reach, a sum of our global pilot projects outside of Europe, total overhead use of adaptive-equipment we have supplied, in subsequent order. Updated April 2016. The left map shows the cumulative percent of global visitors. The right map shows our live visitors.|
What Is Our Current Impact?
Our Outcomes – a brief description of changes that we have brought and examples
The primary outcomes of our projects
(i) Funding has been generated for our target support areas (i.e. research, awareness-education, adaptive equipment) through our events, fundraising activities, and our consultancy services.
(ii) We have used generated revenue and grant funding to reduce the impact of neurological conditions and improve lives of people suffering from neurological conditions via one (or more) of our targeted support areas.
For example, we have funded two clinics with sustainable rehabilitation supplies that they would not have otherwise had access to via government funding. Many of their patients’ disabling symptoms have since improved.
(iii) Lay public have improved their knowledge about neurological conditions as well as how they can get involved in increasing the positive outcomes for people affected by neurological illnesses. In addition, youth globally have increased their knowledge about neurological conditions in a fun and engaging ways.
For example, at one of our art-science seminars, many audience members registered to volunteer and fundraise with us. Also, our low-cost and high-impact pilot projects have successfully run in the United States, Africa, and China with the aim of engaging youth in learning about neurological conditions and reducing stigma in a fun and creative way. For all youth education programmes in total, using strategic partnerships we managed to spend only £667 collectively from Movement for Hope to run all global cross-disciplinary education pilots. More impressively, the youth generated £1200 ($2000) back from a dance-a-thon fundraiser (USA) that ran after the awareness programme. So far we have reached over 4,000 students. We aim for our UK-based education programme to launch by the end of this year.
The secondary outcomes of our collaborations
(i) We provide innovative public engagement opportunities and know-how for public involvement strategies for neuroscience researchers and clinicians.
(ii) We help artists to get involved in projects with impact to develop the scope of their work, and to build their network with our strategic designs.
For example, two dance piece one entitled Aviva’s Story and another entitled Without Borders were produced following collaboration with researchers and patient-advocates’ personal stories. The dancers worked with multimedia for the first time to create a more dynamic piece of work and performed it to a live audience. Other times, artists work with researchers directly to create a more dynamic piece such as Graffiti Meets Science.
(iii) We provide new methods for people affected by neurological illness to build trust and confidence to share their experiences with lay audiences to improve support outcomes.
For example, our patient-advocates have built their confidence from small passive volunteer roles to eventually become involved in larger-scale roles by actively sharing their personal stories as key-note speakers at events, or through their artwork.
One specific example is Sarah, who has Motor Neuron Disease and is now an honorary board member with us: A Brief Video of Sarah Before Her First Exhibition With Us
What Are We Learning And How Can We Improve?
We have achieved a lot in a few years of running and improved a good amount as well. We have improved on communicating our activities and overall aims. We have also improved on how be resourceful with funding in order to maximise donations, sponsorships, income and subsequently our overall impact. Our organisation has continued to be able to spend 100% of donations, sponsorship and ticket sales on it’s funding on its target goals so far and we have raised grant funding for maintenance related fees. Movement for Hope does not take a large amount of funding to operate due to strategic partnerships and dedicated volunteers. Our work would benefit from with a small amount of funding toward governance and expansion of our team and we aim to identify ways to improve in this area this year. For these reasons we are piloting new services to help us become more sustainable and to improve our impact in our target areas. We have tested a few strategies for our services and are continuing to improve on the best methods for sustainability. We aim to utilise funding generated from our services to maintain the organisation and enable us to continue to use 100% of donations, sponsorships and ticket sales toward our target impact areas (awareness-education, adaptive equipment, research support). We readily welcome new supporters to join forces with us to achieve an even greater impact and we thank all of the individuals and organisations that have supported us so far!
Page updated March 2016