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Sarah Inspired – patient-advocate story

By August 5, 2013Dance, Films, Youth

Sarah Ezekiel Inspired

Sarah inspired is Movement for Hopes first awareness film. The film features Sarah Ezekiel, who has Motor Neurone Disease (MND), and her 14 year old daughter Aviva, a young dancer and story teller who choreographed the dancing in the film for her mother.

Motor neurone disease is a progressive neurological disease that attacks the upper and lower motor neurones. The disease progressively disables a person disrupting voluntary movement, such a walking, onward to involuntary movement, such as breathing. Sarah has lived with the or over twelve years now.

At the start of this film we wanted to know what kept Sarah going and how she has found her identity once again. The film has reached over 18,000 people and been featured in prestigious venues such as the Bloomsbury Theatre.

Sarah now sits as an honour art member of Movement for Hope’s board and an active member of our steering committee. Her story has evolved into several awareness projects and she has taken the reins of her life’s hobby, painting, back from the reins of MND using special adaptive eye gaze equipment. This equipment allows her to communicate with her family, friends, and fans.

Below features the inspire video and several other videos of Sarah’s.

  • Sarah Ezekiel inspired
  • Aviva’s Story
  • Sarah’s Journey to Paint
  • Ambryix1

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